Tuesday, January 12, 2010

One Agent for Change

Image of Marly Silverman from FacebookImage of Marly Silverman

I am really impressed with the following: One Agent for Change is the blog of Marly Silverman, another patient advocate and founder of P.A.N.D.O.R.A.-Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy, Inc, a nonprofit, charitable (501 c 3) organization dedicated to create awareness for chronic fatigue syndrome-ME(CFS-ME), fibromyalgia (FM), Gulf War Illnesses (GWI/GWS), multiple chemical sensitivities(MCS,and chronic Lyme disease (CLD).

These folks are cutting through the BS and really trying to help us all. Of course, P.A.N.D.O.R.A is on the various social networking sites!

Reblog this post [with Zemanta]
Posted by Sunshine Sparkle at 4:18 PM
Labels: , , , , , , ,

1 comments:

  1. agentforchangeJan 13, 2010 12:40 PM
    Thank you Marilyn for our support of P.A.N.D.O.R.A.'s efforts. We would not be able to get the NEI Center project off the ground without Sandi Lanford (from Lifelyme(TM)), Veny Musum(from Lifelyme(TM), and Dr. Kenneth Friedman (P.A.N.D.O.R.A.), who have all been working tirelessly to get the NEI Center off the ground.
    We look forward to collaborating with you on the crucial issues that matters to our overall patient community.
    Marly Silverman, Founder, P.A.N.D.O.R.A.
    www.pandoranet.info
    1Voice, 1Community, 1Cause(TM).
    ReplyDelete

Subscribe to: Post Comments (Atom)

SEO Tools

Free SEO Tools

Webring

Powered by WebRing.

ClusterMap

Locations of visitors to this page

Share it

Skechers

SKECHERS

Lyme Advocacy Site's Fan Box

Lyme Advocacy Site on Facebook

Amazon for You

Me circa 1996

Me circa 1996

Twitter

Follow Marilyn_Kerr on Twitter

Search This Blog

Loading...

Followers

Blog Archive

About Me

My Photo
Tampa, FL, United States
I thought that my "troubles" began in 1989 when I was rear-ended by a druggie going 60 miles an hour while I was stopped at a city red light. Two years later, Fibromyalgia was diagnosed. Since I had all the symptoms, it seemed like a valid diagnosis and I was grateful to finally be diagnosed with something! Subsequently, I spent many years immobilized with widespread pain secondary to only being treated with a series of SSRI's. In 1994 I had to retire early and lost my new husband who, like my former employer, just couldn't understand my sudden change in behavior and decrease in mental faculties. To be somewhat fair, those were the "Dark Ages" in Fibromyalgia treatment. I didn't know until 2001 that my "troubles" had started on a beautiful day in 1985 when walking on the Mohawk Trail in NY I was bitten by a microscopic tick and developed Lyme Disease that was misdiagnosed as psychiatric problems, FM then CFS for the next 15 years. If my story sounds like yours, please, PLEASE get tested for Lyme by a reputable laboratory and interpreted by what we call a LLMD (Lyme-literate MD).Both the lab and the MD are equally important to your quality of life.