Wednesday, February 10, 2010

A Reasoned Suggestion about the XRMV/CFS Connection

MIAMI - SEPTEMBER 22: Casey Cervoni (L) and R...Image by Getty Images via Daylife

Please visit http://newly-nerfed.net/2010/02/08/xmrv-testing-and-questionable-ethics/ for a wonderful post suggesting that some CFS patients (who, understandably, have been waiting for so long for some answers about this disease that has cost us family, friends, and employment need to relax for a bit before spending money for a test that will gain them little except for less money in their pockets (since insurance doesn't yet reimburse them for the almost $400 test).
Related articles by Zemanta

Reblog this post [with Zemanta]
Posted by Sunshine Sparkle at 5:49 PM
Labels: , , , , , , , ,

0 comments:

Post a Comment

Subscribe to: Post Comments (Atom)

SEO Tools

Free SEO Tools

Webring

Powered by WebRing.

ClusterMap

Locations of visitors to this page

Share it

Skechers

SKECHERS

Lyme Advocacy Site's Fan Box

Lyme Advocacy Site on Facebook

Amazon for You

Me circa 1996

Me circa 1996

Twitter

Follow Marilyn_Kerr on Twitter

Search This Blog

Loading...

Followers

Blog Archive

About Me

My Photo
Tampa, FL, United States
I thought that my "troubles" began in 1989 when I was rear-ended by a druggie going 60 miles an hour while I was stopped at a city red light. Two years later, Fibromyalgia was diagnosed. Since I had all the symptoms, it seemed like a valid diagnosis and I was grateful to finally be diagnosed with something! Subsequently, I spent many years immobilized with widespread pain secondary to only being treated with a series of SSRI's. In 1994 I had to retire early and lost my new husband who, like my former employer, just couldn't understand my sudden change in behavior and decrease in mental faculties. To be somewhat fair, those were the "Dark Ages" in Fibromyalgia treatment. I didn't know until 2001 that my "troubles" had started on a beautiful day in 1985 when walking on the Mohawk Trail in NY I was bitten by a microscopic tick and developed Lyme Disease that was misdiagnosed as psychiatric problems, FM then CFS for the next 15 years. If my story sounds like yours, please, PLEASE get tested for Lyme by a reputable laboratory and interpreted by what we call a LLMD (Lyme-literate MD).Both the lab and the MD are equally important to your quality of life.