Friday, March 12, 2010

Dealing with Patients Who 'Know More Than You Do' About Their Illness: The Kane Scrutiny: Money and Medicine

Modern medicine of the pastImage by Michael Flick via Flickr

This is a great article for doctors with patients who have invested sometimes years in researching and having undergone multiple successful and unsuccessful treatments protocols thus may know more about the disease than most doctors. How should doctors deal with such a patient?

Dealing with Patients Who 'Know More Than You Do' About Their Illness: The Kane Scrutiny: Money and Medicine
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Posted by Sunshine Sparkle at 1:38 AM
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I thought that my "troubles" began in 1989 when I was rear-ended by a druggie going 60 miles an hour while I was stopped at a city red light. Two years later, Fibromyalgia was diagnosed. Since I had all the symptoms, it seemed like a valid diagnosis and I was grateful to finally be diagnosed with something! Subsequently, I spent many years immobilized with widespread pain secondary to only being treated with a series of SSRI's. In 1994 I had to retire early and lost my new husband who, like my former employer, just couldn't understand my sudden change in behavior and decrease in mental faculties. To be somewhat fair, those were the "Dark Ages" in Fibromyalgia treatment. I didn't know until 2001 that my "troubles" had started on a beautiful day in 1985 when walking on the Mohawk Trail in NY I was bitten by a microscopic tick and developed Lyme Disease that was misdiagnosed as psychiatric problems, FM then CFS for the next 15 years. If my story sounds like yours, please, PLEASE get tested for Lyme by a reputable laboratory and interpreted by what we call a LLMD (Lyme-literate MD).Both the lab and the MD are equally important to your quality of life.