Sunday, January 9, 2011

Invisible Illness to Visible in on fell swoop!

X-ray image of my own hip, with top of femur b...Image via Wikipedia

January 4, 2011.


Just wanted to wish you all the best for the new year and explain my quietness.  On November 15th,on my way to the bathroom, my feet flew out from under me, upending myself, landing fully and heavily upon my back. I spent at least an hour trying to use the bed skirt as something to grasp for an hour or so trying to get myself up, although I had my phone in my pocket but as usual, refused to dial 911, lest there really be nothing wrong. HAH!  Eventually, I did get myself up off the floor and clambered onto my bed in great pain.


Finally, I had the necessary CT scans,an MRI and chest and upper spinal X-rays yesterday afternoon  and yep, my sacrum is cracked and everyone possible has chastised me for not going to the ER on Thanksgiving. (Seems like I've been in this same situation again before! Will I ever learn? (Doubtful!)


Despite the horrible pain, I would not have been able to manage at all without my wonderful Nursing Aide who was scheduled the next day. However, without her, on her days off I fell apart and finally got myself to my doctors.


As much as we may despise medical procedures, there are obviously times that we should readily allow ourselves to be rolled into that ambulance lest that non-treatment worsens our physical problems.


What I fouund extrememly interestring was that I went from that "invisisible" disease that we all hate, to that other extreme where I was no longer an "invisisiblely" diseased person but a seemingly highly visibly ill person dependent unpon a walker and or a cane.


I've used canes, mobilized scooters, walkers and/or wheelchairs yet still was treated as though I was a malingerer. Now, though I have no visisble "marks" or am using nothing other than a cane, the news of a broken hip has changed folks' impression of my illness from non-serious to something more critical.


I wouldn't wish neither my Lyme nor my broken hip on anyone, but I surely would appreciate the same consideration for both.
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I thought that my "troubles" began in 1989 when I was rear-ended by a druggie going 60 miles an hour while I was stopped at a city red light. Two years later, Fibromyalgia was diagnosed. Since I had all the symptoms, it seemed like a valid diagnosis and I was grateful to finally be diagnosed with something! Subsequently, I spent many years immobilized with widespread pain secondary to only being treated with a series of SSRI's. In 1994 I had to retire early and lost my new husband who, like my former employer, just couldn't understand my sudden change in behavior and decrease in mental faculties. To be somewhat fair, those were the "Dark Ages" in Fibromyalgia treatment. I didn't know until 2001 that my "troubles" had started on a beautiful day in 1985 when walking on the Mohawk Trail in NY I was bitten by a microscopic tick and developed Lyme Disease that was misdiagnosed as psychiatric problems, FM then CFS for the next 15 years. If my story sounds like yours, please, PLEASE get tested for Lyme by a reputable laboratory and interpreted by what we call a LLMD (Lyme-literate MD).Both the lab and the MD are equally important to your quality of life.