Lyme Advocacy Site

Take some time to relax so the body can recover.

2011-07-25T05:16:51.561-04:00

Take some time to relax so the body can recover.

I don't know why the above comment came out so...

2010-08-25T15:15:01.243-04:00

I don't know why the above comment came out so messed up, but I think you can get the gist of what I meant.

s is an update to the postithe Women's Center&...

2010-08-25T15:11:17.302-04:00

s is an update to the postithe Women's Center's Senior Home Improvement Programfor funds to assess my a.c. situation, refrigerator situation and any other items that need fixing. I am so excited! (I'm on a waiting list so this is not going to be an immediate fix, but it's certainly steps in the right direction!!
A work ordder was just

I do blame the IDSA. This is a deliberate attempt...

2010-05-02T11:34:00.872-04:00

I do blame the IDSA. This is a deliberate attempt to coverup what they have obviously missed. There is no code of ethics kicking in here. They say they have 9000 members, is that a threat? One of them states that the Attorney General is not a doctor, and he cannot diagnose. The Atonrney General is concerned about the people and how many are saying there is a problem. He is the keeper of the laws the IDSA is breaking and flaunting it. The IDSA is not only breaking laws of the land but most certainly the their own Code of Ethics. Which states do no harm but also, don't malign your fellow doctors. The chioce of treatment is between a doctor and their paitient. When an ID physician is brought into the picture it is still up to the physian and the patient to dicide what the treatment should followed. Instead they have caused many patient to loose trust in the IDSA as we have been put down and told we are nut cases. In Manitoba our pjysisians have openly put Lyme sufferers down. By doing that we have now lost our doctors and cannot get help eventhough we have a great need to have physicians we can trust. This is the greatest harm they could have done. The IDSA needs to get out of their ivroy towers and tell us they care and we want to help these people and they will work with us till they have figured this out. In our desparations we have gone to terrible lengths and been put in harms way because there are people preying on people who need help. The worst part of this has been, the trust has been lost and that is hard to regain. We have to put our lives in their hands which we can no longer do.

Lyme sufferer in Manitoba Canada.

Elizabeth Wood

Carly, thanks for the link. All of the Chronic Ly...

2010-04-01T23:55:48.571-04:00

Carly, thanks for the link.
All of the Chronic Lyme patients I know only wish they could go back in time so they could avoid the years of misdiagnoses and mistreatment by being correctly and swiftly treated at the time of the bite!

One of the dangers of lyme disease is that the ini...

2010-03-31T12:48:46.943-04:00

One of the dangers of lyme disease is that the initial symptoms can be vague, therefore risking a delay in diagnosis and treatment. With the summer around the corner, everyone should know about the 3 stages of lyme disease:_href="http://www.itriagehealth.com/health-blog/3-stages-of-lyme-disease">_http://www.itriagehealth.com/health-blog/3-stages-of-lyme-disease_,/a>

Joanne, I'm sure it would be fine since I copi...

2010-02-23T11:14:52.627-05:00

Joanne, I'm sure it would be fine since I copied the clips from the newspaper's site.
The only thing I would suggest is to credit the reporter better than I did, i.e., add first name.
Isn't the whole thing wonderful?

Hi Brilliant coverage I hope you don't mind if...

2010-02-20T14:01:21.356-05:00

Hi Brilliant coverage I hope you don't mind if I copy and post on my blog as I know many UK Lyme Disease sufferers would find very interesting

Thank you Marilyn for our support of P.A.N.D.O.R.A...

2010-01-13T15:40:10.123-05:00

Thank you Marilyn for our support of P.A.N.D.O.R.A.'s efforts. We would not be able to get the NEI Center project off the ground without Sandi Lanford (from Lifelyme(TM)), Veny Musum(from Lifelyme(TM), and Dr. Kenneth Friedman (P.A.N.D.O.R.A.), who have all been working tirelessly to get the NEI Center off the ground.
We look forward to collaborating with you on the crucial issues that matters to our overall patient community.
Marly Silverman, Founder, P.A.N.D.O.R.A.
www.pandoranet.info
1Voice, 1Community, 1Cause(TM).